10. When Not Even Your Doctors Understand What’s Going On
This story isn’t from a doctor, but from the patient themselves, since no doctor seems to really understand what they have. Every time they try to explain it, the doctor stares at them in disbelief. Anna_Draconis even explained that looking up the condition on the Internet always provides the wrong results for a different condition altogether. Thankfully, someone in the comments managed to provide them with a different name that they can take to their doctors for better treatment.
“I am someone with a rare disorder, called reflux valve disorder. Basically, it means that the valve between my kidneys and bladder doesn’t close or work properly, so I get kidney infections all the time. So far as I know, there’s no surgery or cure for it, just something internal that was deformed when I was born. It’s always a weird thing to explain to new doctors. Sometimes they point to a chart and say, “You do know you’re talking about this valve here, right?” or they just scrunch up their eyebrows in disbelief until I pee in a jar for them.”