Health

These Patients Were Misdiagnosed in the Worst Ways

1. This is why doing tests accurately is important to prevent a misdiagnosis. “My “growing pains” turned out to be maltracking knees and scoliosis. When I… Trista Smith - April 30, 2021

Going to the doctor’s office is never any fun. It doesn’t help when you are a nervous wreck or stressed about what your doctor might say. All the tests and exams that can come along with getting a diagnosis can be tedious. Then, when it comes to getting the diagnosis, whether it was expected or not, that’s a whole other story. Along with a diagnosis, you have to discuss treatment plans, medications, and more. So when you have your nerves all knotted up, waiting for a diagnosis that sometimes seems to take forever to come, you don’t expect to hear something inaccurate like a misdiagnosis.

There’s nothing like getting a diagnosis that can be scary, just to find out later on down the road that it wasn’t even a correct diagnosis. Whether it’s something small, or a major issue, a misdiagnosis is ridiculous to think about. In this article, people share their stories of a diagnosis just to find out later on that they were given incorrect information. Maybe you can relate to some of their stories, but let’s hope you don’t.

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20. A painful misdiagnosis.

“Every month at “that time” since I was 13, I would throw up and faint from the pain of cramps. Been to the ER millions of times, in my hometown and at UCSF hospital. They all told me I was a “drama queen” (one doctor did use that term), and I had severe cramps due to high sensitivity for pain. When I met my boyfriend (age 20), he introduced me to a family friend doctor who ran every test in the book and even put a camera up there while I was awake.”

keettykat goes on to say, “And finally, a cat scan showed that I had cysts forming and bursting almost every single month since I was 13 years old. I was hospitalized because my left Fallopian tube was clogged (almost shut) and formed severe endometriosis. So, I spent seven days in a hospital bed flushing out my entire system. I hope one day I can have my own kids too, but it doesn’t look good. They also told me they couldn’t find my ovary.” On top of being misdiagnosed, a doctor should never belittle someone’s pain tolerance like that. Keep reading for more misdiagnosis stories.

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19. A crazy two-part misdiagnosis story by someone anonymous.

“I started twitching when I was in the sixth grade and a neurologist understandably assumed that it was Tourette’s. I can’t really blame him for that one. Even as tons of evidence to the contrary began to pile up, however, he stuck by the same diagnosis he had thrown at me the first time I visited his office. Throughout all of this, I was desperately trying to get him to pay attention to the shoddy state of my immune system. At this point in my life, I had already become asymptomatic for Strep and got, at absolute least, an infection a month. When my twitching ceased for more than three months, I suddenly failed to meet the diagnostic criteria for Tourette’s & he stuck me with a diagnosis of “Nothing.”

“This case of “nothing” required Risperidone (Schizophrenia), Aricept (Alzheimer’s), Klonopin/Trazadone/Remeron (insomnia), Tenex (ADD) & many more. I was twelve at the time and still have a difficult time remembering that year. I didn’t really know any better & continued to see him until I was fifteen when the aforementioned “evidence to the contrary” could no longer be ignored. While in his care, I developed Narcolepsy, Cervical Dystonia, Epilepsy and experienced plenty more transient conditions. For the last year that I was a patient of his, I had been struggling to convince him that I had an immune disorder. He didn’t think my theory was worth even a referral to a more knowledgeable specialist. Somehow this neurologist knew without any shred of doubt that my immune system was fine.”

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18. The terrible misdiagnosis continues.

“He didn’t think my theory was worth even a referral to a more knowledgeable specialist. Somehow this neurologist knew without any shred of doubt that my immune system was fine. The last time I visited him, I sobbed in his office, begging him to help me and he looked me in the eye and said, “I don’t think there’s anything wrong with you.” It turns out I had a massive, unchecked infection that had reached my nervous system. Had it been caught in the first stages, it could have been completely forgotten about with two weeks of antibiotics. Instead, after a year of high-dose antimicrobial therapy (for more than just that infection) at seventeen years old, I am permanently damaged.”

“My symptoms have improved drastically and I have forgiven most of the doctors that missed my diagnosis over the years, but I can’t seem to forget the one that kept me under his care for three years without ever having the courtesy to even entertain the notion of a diagnosis. Had he not been content with throwing drugs at me, had he looked at all, my infection could have been found quickly and easily. But, from what I can tell, he had no interest in taking advice from some stupid kid even though I was pointing him in the right direction. I try my best to tell myself that he couldn’t have been expected to listen to me, but I can’t accept that. He should have listened to my results. I got my blood drawn once a week while under his care & not once did it come up without an infection.”

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17. A second opinion is necessary.

“My family doctor has taken care of my family since he started. I have heart problems, breathing problems, am hypoglycemic and have depressive episodes. I also have an undiagnosed issue that randomly causes me to throw up every day for a month, usually leading to a day where I throw up for 4-8 hours, however long it takes for me to be taken to the ER to be given intravenous medications. My liver has swollen, and I now need medication that is actually for chemo patients to stop the throwing up.”

“However according to my doctor, I am only hypoglycemic. This was only found out when at 14, my mom threw a fit for the testing. It turns out my blacking out was my sugar crashing. I now eat every few hours to make sure I stay in range. He will not listen to any issue from me, only the other members of my family. I can not wait to move onto my husband’s insurance so that I can go to a different doctor or have enough money to pay for a check-up.”

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16. Talk about a scary misdiagnosis.

“I had this bump on my tongue; my doctor told me it could be a sign of HIV and gave no other explanations of what else it could be. So, I had all my labs and an HIV test done. I had only been with two people and yet felt like the whore of Babylon. I called my boyfriend (who is now my husband), crying and telling him he needed to get tested. Then, I had to wait 2 weeks (this was back in 2000). I remember holding the sides of the table in the waiting room for the announcement of impending doom.” says hkreilly80.

“Another doctor came in gave me the results of my labs and went to leave. I said, “Um, what about my HIV test”? she looked at me like I was nuts, and said “Uh, no HIV, you are fine.” She asked me why I was worried. I showed her the bump on my tongue and told her what the previous doctor had said. She had this look of shock, and horror on her face, and said, “yeah that is due to a vitamin deficiency, just take a good multivitamin, and you will be fine.” Here I thought I was dealt the death card, and I just needed more vitamins.”

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15. Getting this misdiagnosis is not cool.

“I donated blood at school. Three weeks later, I got a letter from the Red Cross advising that they had tested my blood. The test results were 93% certain I was HIV positive. I shook uncontrollably, reading that letter. Furthermore, I could barely stand. I checked the address and name 30 times–but it was always me. I cried, and called my girlfriend, the only person I had slept with. Then, I left a shaky message about needing to talk. I showed her the letter. She was sure it couldn’t be true, but I could tell she was scared too.” shares Horaenaut.

“We took me to get tested, the doctor tried to reassure me by saying it was highly unlikely given my “lifestyle choices” that I had HIV. Still, it was an agonizing week waiting for the blood test results (was it really only a week?). I started seeing the stupid “other symptoms” of HIV that I read about on hypochondria inducing medical websites. I know AIDS is no longer a certain death, but when we finally got the results, it felt like I had just been proven innocent after spending 14 years of a life sentence in jail. No HIV. No idea why the false positive had turned up before. But they were certain that there was no way I could be HIV positive.”

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14. A doctor who doesn’t care who is listening.

“The summer my children were 9 and 6, I took them with me to a doctor’s appointment to have a growth on my scalp checked out. It hadn’t been there 2 months prior, so on the way to Grandma’s, I decided to get it checked out at our local walk-in medical center. Within minutes my children and I are in an examination room talking about what to get for lunch after I see the doctor. I reassure my guys that Mommy just has a little bump on her head that she wanted the doctor to look at. The doctor comes in, takes one look at my scalp, and tells me its small cell carcinoma, and by the size of it, it’s quite advanced and that I should start thinking about my final arrangement as I probably only have 2 to 3 months left to live.” says jerseyg67.

“As he’s saying this, I am looking at my kids’ faces wishing he would just shut up and wondering how he can be so matter of fact in front of them. The doctor finishes delivering my death sentence and promptly walks out. At this point, my boys are crying, and their eyes are HUGE with terror. “Are you going to die? “is a question I didn’t know how to answer when my 9-year-old asked me. I called my husband, my mother, and my dermatologist. So, I told the dermatologist the story and got an appointment for the very next morning. I show up at the dermatologist, she takes her one look and declares it a wart. (I was grossed out but relieved). She removed it right then and there. That’s my worst. I got to see the fear of my imminent death in my children’s eyes over an effing wart.”

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13. Again, second opinions are important.

“I was trying to jump from my little brother’s bed to mine. I failed, landing squarely on the floor, and broke my arm. We went to the doctor that night, but the jerk didn’t even bother to take an X-Ray. He told us that I had just bruised my arm and that I would be fine. One week later, I’m still in an immense amount of pain. Pain really didn’t make me cry much as a kid (and when it did, all it took was a joke for me to start laughing and forget about it), but I was still crying over my arm.”

JackTheFlying continues their story by saying, “My parents ended up taking me to another doctor, who took the time to… well you know, do his job and take an X-Ray. It turns out it was broken. That was also the day I learned the word “Schmuck.” Our new doctor used it to describe our old one.” No kid should have to deal with pain like that and be ignored; what on earth was that first doctor thinking not doing a simple x-ray? Keep reading to learn more about terrible misdiagnosis stories.

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12. Things like this could easily be avoided, too.

Sofa_Queen shares a story, “Not me, my husband. I took him to a minor emergency clinic for pain in his leg after a fall. X-ray was done, Dr. said looked good. Said it must be from a disc in his back, pain radiating down his leg. I went to the spine doctor after images (not sure if CT or MRI, hubby didn’t ask) had injections in the spine. No help. I went to the second doctor, had a test done for blood clots in the leg. Nope. I came home one afternoon to find a big guy on the floor, crying from pain.”

“Took him to my Dr, whom I had been trying to get him to go to for weeks. One x-ray later, broken tibia. It started as a hairline fracture but progressed to a total break since he had been walking on it for weeks. I told him to sue the first two idiots, but he’s such a laid-back guy he didn’t want to go through the hassle.” Something that could have been totally avoided had the doctors actually given the correct diagnosis. Keep reading for more terrible stories about people who had a misdiagnosis.

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11. Some doctors don’t know everything and give a horrific misdiagnosis.

“My friend was told, “Your child has a calcium deposit in his heart, which means he probably has a trisomy, 18 or 23. Would you like to schedule an abortion?” She called me (as I was in school for genetics at the time) and asked me to research this a bit. A quick Wikipedia search alone said that 3-5% of babies with calcium deposits in the heart have a trisomy, but most kids with trisomies have calcium deposits in the heart. I don’t know what the frick that doctor was on.”

“They didn’t even test her kid for genetic deficiencies. They just saw via ultrasound that he had a calcium deposit in his heart, something that will go away on its’ own in 90% of babies. Then, they told her she should get an abortion because there was a 3-5% chance her kid would have a trisomy. I was 21 and in school at the time and diagnosed her doctor with moron syndrome… The kid is about a year old now and 100% healthy (even a bit tall and smart for his age).”

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10. Unfortunately, this person has several misdiagnosis stories to share.

“I have two. Both could’ve killed me. First, I went to the hospital after peeing blood all day and after suddenly having passed many kidney stones. The ER doctor was a total jerk and was close to the end of his shift. I told him I knew kidney stone pain, and he refused to do a CT scan, told me to suck it up, and sent me home with the diagnosis of a UTI. Fast forward two hours, when I pass out from the pain. My boyfriend rushed me back to the ER. The doctor immediately sent me for a CT since I’d mentioned that I had Medullary Sponge Kidneys, which should’ve been a freaking red flag to the other doc, and I was in surgery within thirty minutes. I was septic, had stones, blocking both kidneys, that were both over 1/2 an inch long.”

Melanie continues, “Second, I was told the day I was scheduled for a certain type of fertility test that I was pregnant. I knew something wasn’t right. My OB did blood work and refused to do a sonogram. A week later, I start to bleed. Go to my OB. He does a sonogram of only my uterus and says I’ve had a miscarriage. Blood work two days later showed my levels to be increasing. He ignores it. The next Monday, I’m at work. The worst pain I’ve ever been in.” I call my OB, who tells me I’m overreacting and that I need to go home and take pain meds and Phenergan and sleep it off. I call my his and back and tell him I won’t be able to get out of the car by myself.”

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9. The misdiagnosis stories continue.

Melanie goes on to say, “He meets me in the driveway, and catches me as I black out. He drives me to the ER, tell them I’d had a miscarriage a week prior, and that I “seem to enjoy ER visits.” Fortunately, they saw the miscarriage and my writhing around on the bed while blacked out, as major red flags, and immediately do a sonogram. Then call my doctor to tell him that not only did I not have a miscarriage, but I was still pregnant; it was a 12-week ectopic pregnancy that ruptured. I was bleeding out. Again, immediately taken back to surgery. I had over 450cc of blood in my abdomen. I lost my right Fallopian tube. My doctor acted like he was mad that he was proven wrong, forgetting that I’m a mother and that his mess up could’ve left my son without a mother.”

“EDIT… I gained a significant amount of weight over a two-year period. So, I went to my PCP, told her I was eating well and doing Pilates. She told me I was lying about what I was eating. Fast forward two years, and after suffering many miscarriages, my OB/GYN asks if my PCP had ever tested my thyroid. Nope. It wasn’t functioning. I’d gained almost 50 pounds and lost many pregnancies because my doctor never tested my thyroid. She’d run blood work, which didn’t show gallstone issues in my mother or sister. (I was so sick that I threw up every day, all day for over a year.). I finally flipped out in her office and told her to order the dang sonogram already! She did, and I was right. I had surgery the next day.”

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8. Even nurses should double-check things to prevent a misdiagnosis.

“Just last week, I had to call my new PCP and request a refill of a muscle relaxer a day early, since I break them in half and several ended up breaking again, getting really crumbly (and they taste like butt), so I waste them. The nurse (or whatever she is) calls back and leaves a voicemail saying, “He prescribed 180 of them!! There’s NO WAY you could be out this fast!” Well, I only got 60. My pharmacy even faxed them and told them so on Thursday. I got no reply that day, so I called back and had to leave a message since they skip out early on Fridays. Then, I got a call this morning asking what pharmacy it was sent to, and I was dumbfounded.”

“I had worked with the same software they use, and I know for a fact it can be looked up to see what pharmacy was used. Besides, I only use one! She’d sent an ointment c lidocaine in it to a different pharmacy completely about a month ago. I called and explained I don’t use that pharmacy, haven’t in years, and their office should have no record of me using it. She got upset with me and said, “Uh well, it’s in here!” So, I had to say, “Uh well, in that case, as the nurse, you should have confirmed with me which pharmacy it should be sent to since there are two in there. Now, remove X pharmacy as Y pharmacy is the only dang one I use.” Apparently, she’s a few fries short of a Happy Meal.”

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7. Kids can know things, too.

Bob4apples shares, “To make a long story short, when I was 12, the front wheel came off my bike at high speed. I arrived at the hospital with two broken teeth and substantial lacerations on my chin and the knuckle of one finger, in addition to the other relatively inconsequential effects of sliding down the road on one’s face. The finger hurt so much that I was basically unaware of the other injuries. After a half-hour or so, I’m attended by the one person in the world I did not want to encounter in an emergency room…my family doctor. As he’s putting 14 stitches in my chin and 6 in my finger, I say, “Aren’t you going to x-ray the finger?” He says, “No, it’s fine.””

“Fast forward a few weeks. The finger is bent at the knuckle and won’t straighten. Now he decides that an x-ray might not be a bad idea. After looking at the x-ray, he concludes that the tendon over the top of the knuckle had gotten damaged and that I would need surgery to shorten it. So I go in for surgery. When I’m sufficiently recovered, they tell me that the surgery was a failure because when they opened my finger, they discovered that the bone had gotten crushed in the accident and, since it had been allowed to mend that way, the only way to fix it would be to re-break the finger (a procedure that I have chosen to forego).”

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6. Sometimes, you got to go with your gut.

Some of these misdiagnosis stories are insane, including this one! DestroyerTZ shares their story, saying, “I had this happen to me when I was young as well (like 10-12yo). They told me it may be signs of appendicitis and said they were going to send me to a specialist to check it out. When my parents took me there, the nurse said I was scheduled for surgery. My parents and I freak out a bit and opt to find another doctor for a second opinion.”

“I end up going to the ER of a different hospital having all sorts of tests done, all coming up negative until they did a spinal tap. It turns out I had Spinal Meningitis. A nurse from the other doctor kept calling our house, telling my parents I’d die if I didn’t have the surgery, when in reality, the ER doctor told me that surgery would have killed me. Fun times.” As a child, to think about that would have been quite scary, and for the parents as well. Thank goodness they didn’t listen to that nurse.

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5. Good thing they went somewhere else.

“I was playing hockey and was part of a fairly harmless check against the boards, nothing significant, other than having my elbow push a rib into my spleen and lacerate it. I immediately knew something was wrong and started sweating badly as well as going pale. Upon going to the emergency room, I was put ahead of others because of the symptoms. I had low blood pressure and felt a bit dizzy. The doctor diagnosed me with a “contusion” and said x-rays shouldn’t be needed because after feeling the exterior of the area that hurt, he detected nothing broken. I was sent home,” says i_am_ericc.

“The next day, I could barely stand up. If I was up too long on my feet, I would black out and fall over. Using the bathroom was a serious hassle, and also, performing the act was pretty painful. We decided to follow up with a local doctor since the game I played was out of town. After some x-rays, I was immediately rushed to a larger hospital upon the discovery of my actual injury. They told me I had lost a ton of blood internally and had a 50/50 chance of removing my spleen. Basically, I could have died overnight if I had kept on bleeding out. What was odd is there were no signs of any of this externally, such as bruising or anything. I ended up staying 3 nights there and keeping it. My hockey season ended early, though.”

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4. Luckily, this misdiagnosis got figured out in time.

“My senior year of college, I appeared to have contracted a case of pink eye. I stopped by the college med center. No one argued with my assumed diagnosis. They gave me pink eye drops of some sort to get rid of it within a week, supposedly. Two weeks go by, and it does not seem to be getting any better, so I manage to get an appointment with an actual eye doctor. He continues to not necessarily argue with the diagnosis and gives me something (stronger?) else that should clear it up. After another month goes by (due to tricking myself into thinking it was getting better)” shares badchecker.

“I get another check-up from the eye doctor pointing out that I thought things were getting better, but they seem to be getting worse now. They seem secretly worried and surprised to see such a thing. Two weeks later (or so…the timeline on all this is sketchy at best), I finally received a phone call. It starts with the question, “Have you ever heard of chlamydia?” I’ve never looked up anything on Google as fast as the words “chlamydia std permanent?” in all my life. By the end of said Google search, I have the knowledge that Chlamydia of the eye is the leading cause of preventable blindness in the United States…(luckily?) it only took him 3 months to figure it out. So yup, there’s that.”

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3. Patients know their bodies.

“My fiance had issues with recurring infections regarding her tonsils. As the daughter of two cardiologists, she wasn’t exactly an idiot regarding her own body and health and told the fellow about her issues and her desire to get her tonsils removed. He, of course, scoffed and disregarded her. Imagine that the contempt doctors have for web MD was amplified for people with MDs in the family. She pointed out that her tonsils were so bad she could produce tonsil stones (that foul-smelling white stuff) on demand.”

Trodamus goes on to say, “He still didn’t want to hear it and didn’t want her to show him. At this point, a veteran physician that knew her parents came by and heard some of the stories. So they gave her a tongue depressor, and he told her to show them. And she did: a quick press on one of her tonsils sprayed the mirror with the stuff. The sage advice the doctor gave the fellow: If they say they can show you, let them!” Keep reading for another misdiagnosis story.

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2. Even veterinarians can give a misdiagnosis.

“My cat was outside when I heard him wheezing. I brought him in, and he continued for a while. He was kind of unresponsive and didn’t move very much. We brought him to the only vet open, 45-minute drive. The vet wanted to do an x-ray/test for cancer. It could cost up to the thousands. My dad, after learning this, immediately asked how much it would cost to put him down. The vet’s reaction was priceless (upon later rumination). He also asked if it could be asthma.” says Ha_window.

“The vet said it was “VERY rare” for a cat his age to start showing signs of asthma suddenly. My dad insisted that as well as keep him in the oxygen tank, they give him a steroid shot. It turns out we avoided a butt-load of medical bills because my dad is a heartless cheapskate (not really because we were spending a lot on our dying dog at the time). We still have a report the vet wrote for our visit on our fridge. It makes my dad sound like a heartless cat-eating jerk.”

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1. This is why doing tests accurately is important to prevent a misdiagnosis.

“My “growing pains” turned out to be maltracking knees and scoliosis. When I felt like my heart was skipping beats and was told it was my anxiety. I found out later it was a Mitral Valve Prolapse. Not an inaccurate diagnosis, but I’ve also gotten: “I see no visible break, but it’s definitely broken.” Uh…thanks, doc? I think. Also, there was the time I went to the emergency room for what turned out to be an easily treatable bladder infection but got treated for STDs. Not any specific STD, they just pretty much instead of cutting off a branch burnt the whole forest down.”

Owlshark continues with their story to say, “Two big shots, and lots of pills that caused a lot of stomach issues later on. They did a pap smear but didn’t do any sort of urinary tract analysis on me and didn’t do an ultrasound. I was 3 hours away from my Primary Care Doctor. When I got back a few days later, he called the hospital I was at to get my results. Apparently, the lube they used when they did the test botched the results. I raged pretty hard that day.” That was the last misdiagnosis. Can’t get enough? Keep reading about the craziest nights at the ER.

Health

People from Around the World Reveal how Bad Their US Healthcare Was

Getting healthcare from anywhere in the world varies, of course, depending on where you are at. Nevertheless, according to some people, the United States healthcare has… Trista Smith - April 29, 2021

Getting healthcare from anywhere in the world varies, of course, depending on where you are at. Nevertheless, according to some people, the United States healthcare has some of the worst to offer. While considering other countries that have free healthcare, that’s quite understandable, right? However, when it comes to treatment, it really shouldn’t matter where you are located. It should all be a similar experience, right? Sadly, though, for many, that just isn’t the case. In this article, you will read other’s stories about just how bad US healthcare really is.

Have a similar story to any of these? Share it with others to get it out there to be heard. Hopefully, you don’t, though. No one should have to deal with any sort of bad experience when it comes to healthcare, no matter the circumstance. Moreover, please don’t let these crazy doctor stories turn you away from seeking help if you need it. Maybe if enough of these stories are heard, something will be done about the healthcare that many receive in the US daily. It’s sad to think that so many people have such similar experiences, and there’s still nothing being done with the high costs of health insurance.

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20. Prescription medications are not affordable in the United States.

“As an older American with company health insurance, your face is daily rubbed in the disgusting healthcare industry and the even worse politicians who have placed us squarely in this mess. The flyover land is fed up, and mark my words; a revolution is on the way. Just today, I was given a prescription by a doctor (50 dollar copay, by the way) for a 30-day prescription that costs 600 dollars. Insurance paid 400 and wanted me to pay a copay of 200 dollars. I said no. Contacted the Dr nurse and requested a less expensive substitute,” said redyrytnow.

“She called back and asked if I were on Medicare – I took it to mean if on Medicare the price would be taken care of one way or another. Then guess what – the nurse gave me a coupon that would reduce the price of the damn medicine to TEN DOLLARS!!! THERE IS NO REAL PRICE TO ANYTHING – just what they can get someone or some insurance company to pay. UPDATE: Picked up the $10 dollars medicine today and was told the pharmacy doesn’t get reimbursed for it – this is one of the largest drugstores in the world, and that tells me they are paying around $10 or less for the product – the pharmacy techs are disgusted by what is happening.”

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19. Medical bills just stack up.

“So get this, most people pay $100-$400 per month for an employer-subsidized health care plan. However, deductibles and copay are often high unless you are one of the lucky few who work somewhere where employers splurge on the best policies. So even something as simple as an x-ray or a broken leg can set you back $500-$1000. THAT’S WITH INSURANCE. Most people don’t have an extra $1000 just lying around. That medical debt often goes on the credit card, accruing interest,” stated Eudaimonics

“Other issues: Surprise Medical Bills – since everyone has a different policy and no doctor is an expert on them all, often you’ll be given a treatment or test that they thought would be covered by your insurance but actually isn’t. Seriously ask around. This happens ALL THE TIME. Accidentally going out of network. You have to worry not only about which medical facilities accept your insurance but also which doctors and specialists do. In short, the US has a piss poor insurance system that primarily benefits outdated insurance companies. That’s the main savings of Medicare for All. We get rid of this expensive and convoluted middleman.”

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18. Don’t have a pre-existing condition if you live in America.

“I work in healthcare. When I worked in a hospital (quite probably for good in fall 2020 – so not ancient history), I saw the consequences every day of our abysmal healthcare system. Even people with insurance sometimes can’t afford medications, procedures, and preventive medicine that would help them stay healthy or even just stay alive. If you are a healthy person from a basically healthy family, then probably our system works just fine for you. But if you have type 1 diabetes, cystic fibrosis, cancer, or any one of a hundred other diseases, you have to be destitute, or you won’t get help from anyone. And if you go to the ER, you will pay the bill, or they will garnishee your paycheck,” says readback, correct.

“It didn’t use to be that way, but it is now. Don’t be a sick middle-class person in America. You can’t afford it. Here is just one of a thousand examples I could give – a middle-class family has a little boy who gets leukemia. It cost them – with insurance – a couple of hundred thousand dollars to treat him. When he died, they still owed $90,000. It’s been two years, and they are still paying off that bill. Yes, the hospital cut them a deal. The deal is they aren’t coming after their house. They have given them time to pay the bill. This is not uncommon for people. I promise you it’s not. I am outraged every day on behalf of my patients.”

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17. Having a genetic disease doesn’t make it any easier.

“I have a genetic disease which had caused serious health issues throughout my life, so I’ve dealt with the system a lot. I’ve been on private insurance, employer-provided insurance, Medicare, and Medicaid. When I was at my worse, I started on employer insurance through my wife. That was reasonable and did not cost us a lot. We divorced, and I was on COBRA for a while, which offered the same coverage, but the premiums were expensive. After that, I was on Medicare which was pretty decent but a confusing system with its donut holes. I had a supplemental program for that. It was overall a fairly affordable system. After I no longer qualified for that and was working again (employer didn’t offer insurance), I was on Medicaid due to my income,” as stated by wogggieee.

“That is the best and most affordable coverage I’ve ever had. Now I have a private insurance plan through a state exchange. It’s sort of expensive, but it covers well. When I was at my worse, if I did not have help from my mom in terms of housing and covering health care costs, I have no idea how I would have paid for it, and it’s possible I might not have lived through it with out coverage. The care I’ve gotten has always been outstanding, but the method of paying for it Sucks. The system is set up to offer the most benefit to those who often need it the least.”

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16. Picking insurance plans is important — and can make all the difference.

“The question is whether you can pay for it. Most people pay for it with an insurance plan. But our insurance system is a convoluted, expensive mess. Whereas Canadians generally are all covered by their provincial government insurance plan, and they can take that insurance plan anywhere, here in the US, whether you have insurance and what that insurance pays for varies wildly. Old people get Medicare. Poor people get Medicaid. Veterans get the VA. Most everyone else gets private insurance through a plan which is paid in full or in part by their employer. Employees often have a choice of plans based on what they think their needs will be: if you’re young and healthy, you might prefer a plan with low monthly payments offset by higher costs at the point of service.”

SmellGestapo also states, “If you are older or anticipate more medical costs, you might do the opposite. But you also have to decide whether you care about seeing one specific doctor and making sure that the doctor is covered by your insurance plan. Or do you not care about seeing the same doctor, and instead, you want a plan that allows you to see any doctor? Even if you make those decisions purposefully, it’s easy to get confused and book an appointment with a doctor, thinking your insurance will pay for it, only to find out later you were wrong and your doctor does not work with that insurance plan.”

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15. It’s not just the healthcare system but the payment system, too.

“The payment system is extremely bad, but I think the outcomes are overblown. A lot of people say we spend more money than any other country yet have worse outcomes, but insurance isn’t the biggest thing affecting health outcomes compared to diet or genetics. Things not normally handled by the insurance system, like drug addiction, can also skew these numbers (though I would argue that a medical issue). The biggest issue with the payment system is that it can be very opaque.” says Avenger007_.

“People only directly see the bill for their health insurance a fraction of the time since most of it is paid by employers. Trying to navigate care can be a nightmare if you want to set up an appointment. Prescription Drugs have too strong Patents, medical devices are upgraded too frequently, causing hospitals to go into too much debt, and services can be patchy in rural areas (i.e., not having an obstetrician ). These are just some of the issues in the system, but it’s also massive in every country, and there are bound to be some good and some bad.”

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14. Healthcare is much more expensive in the US than in other countries.

“It’s true that we have some good doctors and other professionals, but if you compare our life expectancy and healthcare outcomes even for insured individuals to other developed nations, we are far behind. We spend three times as much on healthcare as other countries with similar income levels, per capita, including the fact that more than ten percent of the population is totally uninsured, and the majority with insurance is reluctant to use it because their premiums will go up,” says ChironXII.

“The following is speculation/anecdotal, but it seems that due to the cost and lack of access, even insured people only go to the hospital when their condition becomes an emergency, instead of seeking preventative care. This leads to our much worse overall outcomes. PS Hospital errors are the third most common cause of preventable death in the US. ~400,000 deaths annually. We lead other developed countries in this area by as much as 10-30% as well.” This obviously should not even be happening, let alone be a worry for anyone.

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13. It doesn’t really make sense for these outrageous costs!

“The problem with healthcare in America is that it is ridiculously expensive. Due to the way the health insurance industry works with the healthcare industry to set prices, if you do not have insurance, everything is ridiculously overpriced. For most people without insurance, the only way to get any medical care is to go to the emergency room. Emergency rooms are not allowed to send someone away with a life-threatening illness, even if that person cannot pay. They do not have to treat someone with a chronic condition who cannot pay, though, as long as it is not immediately life-threatening.”

VVillyD also states, “Getting insurance is usually rather expensive. The majority of Americans get their insurance through their employer. Health insurance companies will usually offer plans to an entire company. The idea here is to group everyone in the company into the same risk pool. Some of the people in the company use more insurance, some useless, and the insurance company sets costs so that they anticipate making a profit in, long term. Most of the time, the employer will share a portion of the cost, paying part of the premium or deductible while each employee pays the rest.”

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12. Try not to put off care just because you have bad insurance.

“I know many people who work in the health care industry, and many times the story of a person not receiving treatment until the last minute is because they didn’t take time to be seen preventively. My wife worked with an OB/GYN who was sued because one of the patients would not return for a follow-up on an abnormal Pap smear. She finally started seeing someone else who diagnosed her with cancer, from which she lost her life. The children sued the original doctor because she didn’t get their mom to come back for care,” stated cocuke.

“Apparently, with the right people, you can be made liable for someone ignoring your repeated calls and attempts of contact. Two doctors, a midwife, and all of the office support staff, about ten people had to find new jobs. One doctor decided to just leave the industry rather than go through it again. The biggest failure of the American health care system is the litigious nature of America. Big lawsuits make headlines, and headlines move political interest, and the cost of it all comes back to the people who use the service. Other than that, we have amazing healthcare.”

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11. Employer insurance is not the same as non-employer insurance!

“As other people have said, it’s wonderful as far as the doctor’s abilities and the sheer volume of amazing medical personal…but I’d like to clarify. Most America’s get healthcare through their employers. I work for a huge company that covers the majority of my healthcare costs. I pay a small price every month, and I have medical, dental, and vision. So, I can go to any doctor that will accept my insurance, which is 90% of doctors. And I’m lucky enough to afford the best healthcare plan from my employer, so my copay is low or sometimes free,” says Axtorx.

“My friend, on the other hand, doesn’t work full time and therefore can not get healthcare from her employer. She could pay for healthcare through the Affordable Care insurance, but she doesn’t because she can’t afford the extra expense while paying rent/bills. See, she falls into a gap that a lot of Americas do. The gap where they can’t get healthcare from their employer, they don’t make enough money to afford healthcare as a single-payer, but they make too much money to be on Medicare. My insurance only costs about 600 a year. My friend’s insurance, not through her employer, would cost about 200 a month. And there are other single-payer insurances that are even more, like Cobra.”

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10. And it continues…

Axtorx continues, stating, “Basically, anyone can get healthcare, but not everyone can afford it. And when you don’t have insurance, that’s when you get in trouble when you’re sick. For example: If I have the flu, I go to any doctor in my area, I pay a copay of 25 dollars, I see a doctor. I get blood tests and labs and most anything I need done, no charge. I’m told I have the flu. I get a script, I go to the pharmacy and get my meds filled for a low cost (probably about ten dollars) through my insurance.”

“The whole event probably costs me 35 bucks. My friend has the flu. She goes to a walk-in clinic. She pays 125 dollars to see the doctor. She’s charged extra for every lab or shot she’s given. She gets her script. She fills her meds, which cost more, with no insurance. Her trip probably costs her almost 200 dollars. And that price range changes drastically if there ER visits, surgery, ambulance rides, etc. if you need an MRI, X-ray or need to see a specialist, with no insurance, you could be looking at thousands of dollars.”

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9. Healthcare feels like a gamble for most Americans.

“There are two main issues: 1. Hospitals are allowed to charge whatever they want for a procedure, and they’re driven to make money. 2. Insurance companies are the ones paying the bills, and they also are driven to make money. The first is pretty self-explanatory. As to the second… Health insurance in and of itself is a gamble and an expensive one at that. You’re betting that you will get sick. The insurance company is betting you won’t. It’s expensive enough to pay for as is, but then there are situations where the insurance company might not cover something you need,” JennJayBee states.

“In the past, there were also caps to how much they would payout, and insurance companies might even drop you in the middle of treatment if you were too expensive. If you had a pre-existing condition (like being a cancer survivor), some companies wouldn’t even sell you insurance, and of those that did, most wouldn’t cover you if you had a future-related issue, like your cancer returning. Add to that, with all the costs to our government and to patients themselves. We don’t necessarily get a better quality of care. In many ways, our system is worse. All of those nightmarish stories you hear about medical malpractice in other countries? We have them, too.”

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8. Back pain and US healthcare insurance is a joke.

“My wife had to go to three specialists about back pain before one approved of an MRI. The tech did the wrong area, and we had to go back. Last fall, her primary care physician was determined it was kidney stones, and the specialist convinced us to agree to surgery she didn’t need that provided zero benefits. It took us nearly a year and quite a bit of missed work for her to learn she has five bulging discs and one herniated disc in her back possibly from a car wreck a couple of years ago.”

“Three years ago, my younger brother went into the hospital with back trouble. He developed a respiratory infection(with a fever) while in the hospital. They eventually sent him to a physical therapy facility like that. He was dead eleven hours later. When my older brother was born, he had to go into the NICU due to a bleeding problem. My mother’s insurance company at first refused to pay any of the expenses, stating that they didn’t approve the charge beforehand. Apparently expecting my mother to anticipate a bleeding problem for her premature child, call them, and wait for approval, all in the late 1970’s. All anecdotal, but these are people with the money for care and great insurance. The system could be better.”

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7. This subject of poor healthcare insurance in the US gets people on a rant.

Megalomaniac says, “There are also serious economic issues as well, and in many ways, global healthcare rides on American innovation and private healthcare. I think some of the things Trump did make a ton of sense, like the price disclosure regulation as well as the Medicare paying the lowest price through EO. Should someone lose their entire life savings because they got cancer? Why wouldn’t someone have insurance for serious issues like cancer, car accidents, strokes, etc.? If they don’t have insurance, then yes, they need to pay for their healthcare.”

“Chances are, they will spend much much more than their ability to pay and leave the hospital on the hook. And that is okay because they received their healthcare. I’ve already addressed that we share common ground addressing cost issues. You act like you want massive thousands of dollars provided for nothing like it grows on trees and it doesn’t have economic impacts. You lose a lot in the sense of economic incentives towards healthcare development, you lose the profit driver to act as an efficiency driver, and you end up having the typical government bloat, corruption, graft, and obscenities.”

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6. Having more than one insurance doesn’t seem to matter, either.

“I have two sets of insurance, and trying to get them to pay for anything is a bitch and a half. And if you make the tiniest mistake on your end, despite providing insurance information 13x over, they’ll be as quick to deny paying for you and try to get you to foot the bill. And thank god I have two sets. I was in the hospital for five weeks plus two stints in inpatient rehab and two months of outpatient in 1 year. It’s been 1.5 years later, and I’m still getting bill collection calls and mail daily about how I’m going to pay $800K in medical bills… I literally had a chick act like I was casually asking if I was going to throw down 100k in 10k annual payments,” says Tommy_Wisseau_burner.

“I literally laughed on the phone and told her to get with my insurance companies and figure this shit out because I’m not paying dick for something they should’ve figured out a year ago. Now I try to imagine the other stuff I need (as an amputee) and people with chronic illnesses/conditions, and people without insurance, and how they’ve been fucked over. Let’s not forget that until about 10-15 years ago, denying people with pre-existing conditions was an actual debate point and whether it should be allowed. As an amputee, there was a bill recently about whether there’s a policy to have one prosthesis for your entire life… just 1. These bad boys can cost 50k plus. Mine costs about 80k.”

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5. We need to do better with US healthcare insurance.

“The care is good, probably better than most places. And frankly, with insurance, I have zero concerns about myself or my family’s health. As a whole, it’s significantly better than it is perceived on Reddit. What I don’t like is there is still 8-10% of the population that isn’t insured. I feel like a catastrophic plan should be required, just like car insurance is required. (Toss it on taxes if you can’t prove private insurance),” stated randocadet.

“What infuriates me about our system is just how much the hospitals and drug companies overcharge. They can do this because most people have insurance, and it’s spread out over millions. But they’re doing it enough where our government spends the most per capita on medical expenses. This isn’t just a healthcare problem but really a problem whenever the US government tries to buy anything: military, construction, private contracts, etc. Everyone gouges the government. Before the US can seriously contemplate universal healthcare, we need to address the overinflated prices of care.” We need to do better as a whole, that’s for sure.

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4. Not rich enough to receive cancer treatment.

“I already know I’m not rich enough to get cancer treatment if I needed it here in the US and accept that. What I have an issue with is having no access to care without GOOD Insurance. I needed my gallbladder removed in 2012 but had poor insurance. My portion of the cost was $2300 and needed to be paid upfront before insurance would kick in. No hospital would do the surgery without my portion paid upfront. Not having $2300 (my entire monthly income), I had to wait three years until I had a better job with better insurance where my cost was only $450,” says bigh2k1.

“I would have preferred socialized govt health care and a 2-year wait over the three years I lived with pain and the fear of my gallbladder bursting. Insurance told me when my gallbladder does burst. They will cover my hospital costs without my prepaying my copay portion. But they said to be within 2 hours of a hospital or the toxins released from my burst gallbladder could kill me. Even routine care in the US is only available to those who can afford their copays OR the extremely poor who qualify for the government Medicaid insurance.”

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3. Japanese insurance and healthcare compared to US.

“I’m American. I lived in Japan from 2012-2018, and what a dream that was. Moving back was the worst decision I ever made, and it primarily lands on the fact that American healthcare and insurance is the worst damn system imaginable. I had my last three wisdom teeth taken out last November. I have dental insurance through my employer. They ran it and told me I’d have to cover $1400 of the surgery on my own because I had hit my limit, and the rest would not be covered by insurance. Well, now, two months later, I’ve learned that apparently $1400 wasn’t enough as I have a new bill for nearly $600 more because of things my insurance would not cover.”

“It cost me $49 to have one wisdom tooth removed when I lived in Japan. Even without Japanese Insurance, I could have bought a round-trip ticket to Japan, had the rest taken out, and still have over $300 to spare. That is ludicrous. And my friends wonder why I don’t travel anymore. It’s damn things like this that suck up money. Two months AFTER I think I’ve got everything paid and under control, I get surprise bills from things I apparently didn’t pay enough for. How the HELL do you budget when you could get a $600 demand at any time from a doctor for something that happened months ago?” rants ccaccus.

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2. Problems at the eye doctor because of US healthcare insurance.

“I wear contacts, and often times my eyes get pretty dry because of it, so much that the veins surrounding the edges of the contact will get very red, and my eyes will get irritated. It’s like the contact was sucking all of my moisture out. I brought this issue up to my eye doctor, and she gave me a prescription for some eye drops that should help. Cool. I’m expected them to be like $70 or so with insurance (not that I know much about insurance coverage, considering I’m just in college, but that was my guess). My mother and I got to the store to pick up my prescription. The lady at the counter gets a surprised look on her face,” says Astronomy_.

“She tells us that she’s going to check and make sure it’s the correct prescription… turns out it is, and it costs around $2000. Not to mention they’re individual use?? Wtf are individual-use eye drops? And WHY are they TWO THOUSAND DOLLARS? Insurance would cover a couple hundred, so that brought it down to $1.7k. Actually ridiculous. It’s not even just the insurance that’s bad. It’s the price of it in general… why are they two thousand? I’ll just keep using the over-the-counter contact eye drops that are just contact solution and continue to suffer.”

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1. It’s hard for everyone in America.

childfromthesun explains, “I used to work for a health insurance company, and it was absolutely painful. Sometimes even we didn’t understand the decisions our company made. I could only do it for a few months. I had to help a poor lady who, post-heart surgery, was promised over the phone it was covered. Then the company suddenly backtracked after the fact and asked her to cough up 60K. My boss threatened me not to tell her how to dispute. Absolutely HORRIFIC! Dealing with crying dying cancer patients on the phone just trying to offset costs for their surviving relatives and poor elderly being taken advantage of broke my heart.”

“Listening to distressed patients in pain wondering why their life-saving med prices jumped from $50/m to $5000/m NO EXAGGERATION! And the cold and calculated cruelty of the company I worked for astounded me. I couldn’t believe this was an everyday reality for sick people. My husband was about to move to America to live with me! Then, I realized we were making a mistake. I stopped him from boarding the plane because I know this would be our future when we grew elderly. I knew in my soul I had to get the hell out of this place.”

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